MONDAY, July 22, 2024 -- Management of children and adolescents with sickle cell disease (SCD) requires comprehensive care from a pediatric primary care provider and a multidisciplinary team, according to a clinical report published online July 22 in Pediatrics.Amber M. Yates, M.D., from the Baylor College of Medicine and Texas Children's Hospital in Houston, and colleagues present an overview focusing on the practical management of children and adolescents with SCD.The authors note that SCD is a complex disorder with multisystem manifestations requiring comprehensive care from a pediatric primary care provider and a multidisciplinary SCD team.

2024年7月22日，星期一——根据7月22日《儿科学》在线发布的一份临床报告，镰状细胞病（SCD）儿童和青少年的管理需要儿科初级保健提供者和多学科团队的全面护理。休斯顿贝勒医学院和德克萨斯儿童医院的医学博士Amber M.Yates及其同事概述了SCD儿童和青少年的实际管理。作者指出，SCD是一种复杂的疾病，具有多系统表现，需要儿科初级保健提供者和多学科SCD团队的全面护理。

All aspects of general pediatric care should be managed by the pediatric primary care provider, and they should co-manage SCD-specific manifestations with the SCD team. The patient and family should be involved in all decisions. At least annual consultation with a multidisciplinary SCD team is strongly advised, although the extent to which the comprehensive care is delivered by a pediatric primary care provider versus the multidisciplinary specialist team will vary by community as well as family preference and the frequency and severity of SCD manifestations.

一般儿科护理的所有方面都应由儿科初级保健提供者管理，他们应该与SCD团队共同管理SCD特定的表现。患者和家属应参与所有决策。强烈建议至少每年与多学科SCD团队进行咨询，尽管儿科初级保健提供者与多学科专家团队提供的综合护理程度因社区，家庭偏好以及SCD表现的频率和严重程度而异。

Age-specific screening for disease complications is important at all SCD comprehensive visits. Education about and planning for urgent medical evaluation should be developed early and reviewed at each visit. The patient and family should be made aware that SCD is treatable but requires attention and active management to achieve optimum life outcomes.'Improvements in care have resulted in almost all children with SCD surviving into adulthood and transitioning into adult care, which has allowed shifting the goal of care to improved quality of life,' the authors write.Several .

在所有SCD综合访问中，针对年龄的疾病并发症筛查都很重要。。应该让患者和家属意识到SCD是可以治疗的，但需要注意和积极管理才能取得最佳的生活效果。”作者写道，护理方面的改进导致几乎所有患有SCD的儿童都能存活到成年，并过渡到成人护理，从而将护理目标转变为提高生活质量。几个。