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国家罕见病组织宣布为罕见病研究提供超过10万美元的赠款

National Organization for Rare Disorders Announces More Than $100,000 in Grant Funding Available for Rare Disease Research

CISION 等信源发布 2023-09-19 23:10

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Three New RFPs Now Open for Qualified Researchers of AVM, LYS, and MMIHSDANBURY, Conn., Sept. 19, 2023 /PRNewswire/ -- The National Organization for Rare Disorders (NORD®) announced three new grant funding opportunities related to the following rare diseases: Arteriovenous Malformation (AVM), Levy-Yeboa Syndrome (LYS), and Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (MMIHS).  NORD's Research Grants Program provides seed-money grants to qualified investigators for scientific and clinical research into diseases for which there are few other sources of funding.

2023年9月19日/PRNewswire/-国家罕见疾病组织(NORD®)宣布了三项新的资助机会,这些资助机会与以下相关罕见疾病:动静脉畸形(AVM),Levy-Yeboa综合征(LYS)和巨囊藻-微结肠-肠蠕动综合征(MMIHS)。诺德的研究资助计划为合格的研究人员提供种子资金资助,用于对其他资金来源很少的疾病进行科学和临床研究。

These grants are competitive and international. .

这些赠款具有竞争力和国际性。 .

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The National Organization for Rare Disorders (NORD) announces three new research opportunities for AVM, LYS, and MMIHS.

国家罕见病组织(NORD)宣布AVM,LYS和MMIHS有三个新的研究机会。

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Photo of a medical researcher looking through a microscope

医学研究人员通过显微镜观察的照片

With funding from the Tyler James Abizeid Foundation, NORD is accepting applications for one grant of up to $35,000 US, for scientific and/or clinical research studies related to Arteriovenous Malformation (AVM). Deadline for initial applications is Monday, October 16. View more information and apply here. .

在Tyler James Abizeid基金会的资助下,NORD正在接受高达35000美元的一笔拨款申请,用于与动静脉畸形(AVM)相关的科学和/或临床研究。初始申请截止日期为10月16日星期一。查看更多信息并在此处申请。 .

With funding by the Maxwell Family, NORD is accepting applications for one grant of up to $40,000 US, for scientific and/or clinical research studies related to Levy-Yeboa syndrome (LYS). Deadline for initial applications is Monday, October 16. View more information and apply here.

在Maxwell家族的资助下,NORD正在接受最多40000美元的一笔赠款,用于与Levy-Yeboa综合征(LYS)相关的科学和/或临床研究。初始申请截止日期为10月16日星期一。查看更多信息并在此处申请。

With funding from the MMIHS Foundation, NORD is accepting applications for one grant of $30,000 US for scientific and/or clinical research studies related to megacystis microcolon intestinal hypoperistalsis syndrome (MMIHS). Deadline for initial applications is Monday, October 16. View more information and apply here. .

在MMIHS基金会的资助下,NORD正在接受一笔30000美元的申请,用于与巨囊藻-微结肠-肠蠕动综合征(MMIHS)相关的科学和/或临床研究。初始申请截止日期为10月16日星期一。查看更多信息并在此处申请。 .

Grants will be awarded to qualified researchers to initiate small scientific research studies or clinical trials, the results of which could be used to obtain funding from the NIH, FDA, or other funding agencies, or to attract a corporate sponsor. 'Since 1989, NORD's grants have led to the development of two FDA-approved treatments and many peer-reviewed publications.

赠款将授予合格的研究人员开展小型科学研究或临床试验,其结果可用于从NIH,FDA或其他资助机构获得资金,或吸引公司赞助商。“自1989年以来,诺德的赠款导致了两种FDA批准的治疗方法和许多同行评审出版物的发展。

Over 200 grants have been awarded, totaling over $9 million in approved funding. The vision behind these critical study grants is to ultimately lead to new diagnostics, treatments, and cures for rare diseases,' said Aliza Fink, Director, Research Programs, NORD. To learn more or submit to the 2023 NORD Research Grants Cycle, visit rarediseases.org/advancing-research/request-for-proposals/About the National Organization for Rare Disorders (NORD) With a 40-year history of advancing care, treatments and policy, the National Organization for Rare Disorders (NORD) is the leading and longest-standing patient advocacy group for the 25-30 million Americans living with a rare disease.

已授予200多项赠款,批准资金总额超过900万美元。NORD研究计划总监Aliza Fink说,这些关键性研究资助背后的愿景是最终导致新的罕见病诊断,治疗和治疗,以了解更多信息或提交给2023年NORD研究资助周期,访问rarediseases.org/advanced-research/request-for-proposions/关于国家罕见疾病组织(NORD)有40年的推进护理,治疗和政策历史,国家罕见疾病组织(NORD)是领先的为患有罕见疾病的2500万至3000万美国人提供最长期的患者倡导小组。

NORD, a 501(c)(3) nonprofit, is dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 330 patient organization members, is committed to improving the health and well-being of people with rare diseases by driving advances in care, research and policy.

NORD是一家501(c)(3)非营利性企业,致力于患有罕见疾病的个人和为其服务的组织。NORD及其330多名患者组织成员致力于通过推动护理,研究和政策的进步来改善罕见病患者的健康和福祉。

For more information, please visit https://rarediseases.org/. SOURCE National Organization for Rare Disorders (NORD).

欲了解更多信息,请访问https://rarediseases.org/.资料来源国家罕见病组织(NORD)。