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美国肾脏基金会发起针对两种罕见肾脏疾病的教育宣传活动

American Kidney Fund Launches Educational Awareness Campaigns for Two Rare Kidney Diseases

GlobeNewswire 等信源发布 2023-09-26 21:18

可切换为仅中文


ROCKVILLE, Md., Sept. 26, 2023 (GLOBE NEWSWIRE) -- Today, the American Kidney Fund (AKF) launched educational awareness campaigns for two rare kidney diseases: complement 3 glomerulopathy (C3G) and IgA nephropathy (IgAN). The campaigns, sponsored by Novartis, provide patients with information about the diseases and connect them with resources to help them better understand and manage these conditions.

ROCKVILLE,Md。,2023年9月26日(GLOBE NEWSWIRE)-今天,美国肾脏基金会(AKF)发起了针对两种罕见肾脏疾病的教育宣传活动:补体3肾小球病(C3G)和IgA肾病(IgAN)。由诺华赞助的运动为患者提供有关疾病的信息,并将其与资源联系起来,以帮助他们更好地理解和管理这些疾病。

C3G and IgAN are two types of kidney diseases that are related to improper function of the immune system, which is your body's cells and tissues that fight infection. With C3G, a part of the immune system called the complement system becomes overactive and doesn’t work properly, leading to damage and inflammation in the kidneys.

C3G和IgAN是两种类型的肾脏疾病,与免疫系统的不正常功能有关,免疫系统是您身体抵抗感染的细胞和组织。使用C3G,称为补体系统的免疫系统的一部分变得过度活跃并且不能正常工作,导致肾脏损伤和炎症。

This damage prevents the kidneys from filtering toxins out of the blood and can cause kidney failure in about half of adults who are diagnosed with the disease. IgAN causes kidney damage when a person’s immune system produces abnormal antibodies in the kidneys that trigger inflammation and reduce the kidneys’ ability to filter waste and fluid from the bloodstream, which can eventually lead to kidney failure.

这种损害可以防止肾脏从血液中过滤出毒素,并且可以在大约一半被诊断患有该疾病的成年人中引起肾衰竭。当一个人的免疫系统在肾脏中产生异常抗体时,IgAN会引起肾脏损伤,从而引发炎症并降低肾脏从血液中过滤废物和液体的能力,最终导致肾功能衰竭。

“Knowledge is power when it comes to managing kidney disease and staying as healthy as possible,” said LaVarne A. Burton, AKF President and CEO. “We are grateful to Novartis for their support as we launch these educational campaigns and are pleased to share information and resources that will help people with C3G or IgAN and their families advocate for themselves.”   AKF has created dedicated webpages for the C3G and IgAN campaigns that are accessible from AKF’s main website, KidneyFund.org.

AKF总裁兼首席执行官LaVarne A.Burton说:“在管理肾脏疾病和保持尽可能健康方面,知识是力量。“我们感谢诺华在开展这些教育活动时给予的支持,并很高兴分享信息和资源,帮助C3G或IgAN患者及其家属为自己倡导。”AKF为C3G和IgAN活动创建了专门的网页,可从AKF的主要网站KidneyFund.org访问。

They provide information about C3G and IgAN diagnosis, symptoms and management, as well as resources for building and managing relationships with a medic.

他们提供有关C3G和IgAN诊断,症状和管理的信息,以及建立和管理与医务人员关系的资源。