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大冢,Missy Franklin联手开展罕见肾脏病运动

Otsuka, Missy Franklin team up for rare kidney disease campaign

Fierce Pharma 等信源发布 2023-11-03 20:55

可切换为仅中文


Multiple Olympic gold medalist swimmer Missy Franklin is sharing a personal story about kidney disease as part of Otsuka’s new campaign.

作为大冢新运动的一部分,多次奥运会黄金游泳运动员米西·富兰克林(Missy Franklin)正在分享一个关于肾脏疾病的个人故事。

The new campaign focuses on spreading awareness about autosomal dominant polycystic kidney disease (ADPKD), a rare genetic condition that causes cysts to form on the kidneys, eventually leading to a decline in kidney function, which in turns leads to the need for dialysis or a transplant.

新的运动重点是传播对常染色体显性多囊肾病(ADPKD)的认识,ADPKD是一种罕见的遗传病,导致肾脏形成囊肿,最终导致肾功能下降,进而导致需要透析或移植。

Franklin, who made her Olympic debut in 2012 at the age of 17 and won four gold medals, retired in 2018. She is now speaking out about ADPKD, a condition her father was diagnosed with when she was young.

富兰克林(Franklin)于2012年17岁首次奥运会,并赢得四枚金牌,于2018年退休。现在,她正在谈论ADPKD,这是她父亲年轻时被诊断出的疾病。

This is a family story but a personal one too as, while rare, the child of a parent with ADPKD has a 50% chance of inheriting the condition.

这是一个家庭故事,但也是个人故事,尽管很少见,但患有ADPKD的父母的孩子有50%的机会继承该病。

“Our family rallied around my father's diagnosis, prompting important conversations about living with ADPKD,” said Franklin in a press release. “This condition, while seemingly invisible, is a shared story among hundreds of thousands of families nationwide.”

富兰克林在一份新闻稿中说:“我们的家人围绕着父亲的诊断团结在一起,引发了有关与ADPKD生活的重要对话。“这种情况虽然看似看不见,但却是全国成千上万家庭的共同故事。”

Otsuka and Franklin are raising awareness of the condition by zeroing in on boosting early detection, as the condition can progress quickly.

大冢和富兰克林正在通过集中精力加强早期发现来提高对这种情况的认识,因为这种情况可以迅速发展。

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Otsuka creates Gen J in new Jynarque ads that aim to separate kidney from disease

大冢在新的Jynarque广告中创造了Gen J,旨在将肾脏与疾病分开

They're also promoting “open and honest family conversations about health history,” namely about the increased risk children of ADPKD patients have of getting the disease themselves.

他们还在推动“关于健康史的公开和诚实的家庭对话”,即关于ADPKD患者自身患病风险增加的问题。

The third element is patient support, which Otsuka is promoting by launching a new website at ADPKDQuestions.com for “comprehensive resources to help navigate their health journey.”

第三个要素是患者支持,大冢通过在ADPKDQuestions.com上启动一个新网站来促进“综合资源帮助导航他们的健康旅程”

There is also a video of Franklin’s father talking in a raw and emotional way about how, when Missy was a child, it was becoming “more and more likely” he wouldn’t see her graduate from kindergarten, as his condition was worsening so rapidly.

还有一段视频,富兰克林的父亲以一种原始而情绪化的方式谈论如何,当Missy还是个孩子时,它变得“越来越可能”他不会看到她从幼儿园毕业,因为他的病情正在恶化得如此之快。

His kidneys had begun to fail, but he later had a successful transplant.

他的肾脏开始衰竭,但后来成功进行了移植。

While no treatments are directly mentioned as part of the campaign, Otsuka has since 2018 marketed Jynarque in the U.S. as a treatment for ADPKD. This was the first drug treatment to slow kidney function decline in adults at risk of rapidly progressing ADPKD.

虽然没有直接提到任何治疗作为运动的一部分,但大冢自2018年以来在美国销售了Jynarque作为ADPKD的治疗方法。这是第一种减缓有快速进展ADPKD风险的成年人肾功能下降的药物治疗。

In Otsuka’s recent third-quarter financials (PDF), released at the end of October, the Japanese company noted that sales in the U.S. of its drug “increased significantly as a result of an increase in the number of prescriptions for ADPKD mainly due to continued efforts to raise awareness of the disease and provision of information about clinical data.” Sales for the quarter were up 32.9% year over year. .

在10月底发布的大冢最近的第三季度财务(PDF)中,日本公司指出,由于ADPKD处方数量的增加,其药物在美国的销售额“显着增加,主要是由于继续努力提高对该疾病的认识和提供有关临床数据的信息。“本季度销售额逐年上涨32.9%。 .