EN
登录

癌症主要团体,立法者呼吁伊利诺伊州癌症患者权利法案扩大癌症救生护理的范围

Leading Cancer Groups, Lawmakers Call for Illinois Cancer Patients Bill of Rights to Expand Access to Lifesaving Cancer Care

businesswire 等信源发布 2024-11-14 23:00

可切换为仅中文


CHICAGO--(BUSINESS WIRE)--A coalition of leading cancer organizations is joining key state lawmakers in calling for the passage of the Illinois Cancer Patients Bill of Rights, a resolution and call-to-action declaring that all Illinois residents with cancer diagnoses should be able to access new and emerging treatments, receive care at advanced care centers, and be supported throughout their entire care journey – regardless of their means or background..

芝加哥--(商业新闻短讯)--一个由主要癌症组织组成的联盟正在与州主要立法者一起呼吁通过伊利诺伊州癌症患者权利法案,这是一项决议和行动呼吁,宣布所有被诊断患有癌症的伊利诺伊州居民都应该能够获得新的和新兴的治疗方法,在高级护理中心接受护理,并在整个护理过程中得到支持,无论他们的手段或背景如何。。

The Cancer Care is Different Coalition was founded by City of Hope, one of the largest and most advanced cancer research and treatment organizations in the United States and ranked among the nation’s top 5 cancer centers by U.S. News & World Report, with a leading cancer center in Zion, Ill., and several other locations across the region.

The Cancer Care is Different联盟由希望之城(City of Hope)成立,希望之城是美国最大和最先进的癌症研究和治疗组织之一,并被《美国新闻与世界报道》(U.s.News&World Report)列为美国前5大癌症中心,在伊利诺伊州锡安(Zion)和该地区其他几个地方设有领先的癌症中心。

The coalition will advocate for more equitable access to life-saving cancer care and includes organizations such as the American Cancer Society Cancer Action Network, Susan G. Komen of Greater Chicago, Leukemia & Lymphoma Society of Illinois, American Lung Association of Greater Chicago, National Ovarian Cancer Coalition, NMDP and Cancer Wellness Center..

该联盟将倡导更公平地获得挽救生命的癌症护理,包括美国癌症协会癌症行动网络、大芝加哥的苏珊·G·科门、伊利诺伊州白血病与淋巴瘤协会、大芝加哥美国肺协会、国家卵巢癌联盟、NMDP和癌症健康中心等组织。。

Despite amazing advances in cancer science, many patients are not receiving the latest treatments because of their means, where they live, or barriers in our health care system. Based on the belief that access to lifesaving cancer care is a human right, State Rep. Marcus Evans and State Sen. Mary Edly-Allen introduced the Cancer Patients Bill of Rights resolution, and it is expected to be considered during an upcoming Illinois state legislature session..

尽管癌症科学取得了惊人的进步,但许多患者由于他们的手段、居住地或我们医疗保健系统的障碍而没有接受最新的治疗。基于获得挽救生命的癌症护理是一项人权的信念,州众议员马库斯·埃文斯(MarcusEvans)和州参议员玛丽·艾迪·艾伦(MaryElly Allen)提出了《癌症患者权利法案》,预计该法案将在即将到来的伊利诺伊州立法会议上审议。。

“The speed of cancer discovery is helping save millions of lives, but it’s also leaving many people behind. The passage of the Illinois Cancer Patients Bill of Rights would be a significant step forward in ensuring that patients can access cutting-edge research, treatments and expertise at advanced cancer centers, tailored to their specific cancer needs,” said Pete Govorchin, president of City of Hope Chicago.

芝加哥希望之城(City of Hope Chicago)总裁皮特·戈沃钦(Pete Govorchin)表示:“癌症发现的速度有助于挽救数百万人的生命,但它也让许多人落在了后面。伊利诺伊州癌症患者权利法案的通过将是向前迈出的重要一步,可以确保患者能够在先进的癌症中心获得针对其特定癌症需求的尖端研究、治疗和专业知识。”。

“We are honored to collaborate with Rep. Marcus Evans, State Sen. Mary Edly-Allen and the Cancer Care is Different coalition to help Illinois become the second state to take action on this crucial issue of disproportionate access and care in our state.”.

“我们很荣幸能与众议员马库斯·埃文斯(MarcusEvans)、州参议员玛丽·艾迪·艾伦(MaryEly Allen)和癌症护理不同联盟(Cancer Care is Different coalition)合作,帮助伊利诺伊州成为第二个就本州过度获取和护理这一关键问题采取行动的州。”。

This year, an estimated 23,280 patients in Illinois lost their lives to cancer-related causes, and projections indicate there will be 78,200 new cancer diagnoses in the state.1 Alarmingly, Illinois has higher mortality rates than the national average for nearly every major cancer type, with significant racial disparities in cancer mortality rates.2,3 For example, Black women in the state experience a breast cancer mortality rate that is 48% higher than white women, while Black men in Illinois have a prostate cancer mortality rate that is 135% higher than white men.3.

今年,伊利诺伊州估计有23280名患者死于癌症相关原因,预计该州将有78200例新的癌症诊断。令人担忧的是,伊利诺伊州几乎每种主要癌症类型的死亡率都高于全国平均水平,癌症死亡率存在显着的种族差异。2,3例如,该州黑人女性的乳腺癌死亡率比白人女性高48%,而伊利诺伊州黑人男性的前列腺癌死亡率比白人男性高135%。

“Every Illinoisan with cancer should have the best chance to survive,” said Rep. Evans. “This resolution holds personal significance for me, as I was diagnosed with cancer at the age of 21. I understand firsthand the difference that access to quality care and innovative treatments can have for cancer patients.

众议员埃文斯说:“每一位患有癌症的伊利诺亚人都应该有最好的生存机会。”。“这项决议对我个人来说意义重大,因为我21岁时被诊断出患有癌症。我直接理解癌症患者获得优质护理和创新治疗的差异。

The Cancer Patients Bill of Rights calls for all cancer patients in Illinois to have access to the care and compassion to help them survive long after a cancer diagnosis.”.

《癌症患者权利法案》呼吁伊利诺伊州的所有癌症患者都能获得护理和同情,以帮助他们在癌症诊断后存活很长时间。”。

The Cancer Patients Bill of Rights calls for the following rights for all Illinoisans when confronted with a cancer diagnosis:

《癌症患者权利法案》呼吁所有伊利诺人在面临癌症诊断时享有以下权利:

Cancer patients with complex cancers deserve access to specialized expertise and emerging treatments for their specific type of cancer, including precision medicine and genomic therapies, some of which are only available at advanced cancer centers;

患有复杂癌症的癌症患者应该获得针对其特定类型癌症的专业知识和新兴治疗方法,包括精准医学和基因组疗法,其中一些只能在晚期癌症中心获得;

Cancer patients deserve multidisciplinary supportive care while undergoing treatment, including care that addresses pain, emotional, and overall health needs;

癌症患者在接受治疗时应该得到多学科的支持性护理,包括解决疼痛,情绪和整体健康需求的护理;

Cancer patients should have the opportunity to access emerging therapies informed by the latest cancer research through relevant early-stage and late-stage clinical trials;

癌症患者应该有机会通过相关的早期和晚期临床试验获得最新癌症研究所告知的新兴疗法;

To the extent possible, cancer patients should be able to receive timely cancer care in their community, which is often supported by partnerships between community providers and academic institutions; and

在可能的情况下,癌症患者应该能够在社区及时接受癌症护理,这通常得到社区提供者和学术机构之间合作伙伴关系的支持;和

Cancer patients have a right to fully understand their diagnoses and be informed about treatment options in culturally appropriate and understandable languages.

癌症患者有权充分了解他们的诊断,并以文化上适当且可理解的语言了解治疗方案。

“Cancer patients can have very different outcomes based on their ability to receive early diagnosis and access to the appropriate treatment. That’s especially apparent in Illinois with our dramatic racial disparities for cancer mortality,” said Ally Lopshire, government relations manager, American Cancer Society Cancer Action Network.

美国癌症协会癌症行动网络政府关系经理Ally Lopshire说:“根据癌症患者接受早期诊断和获得适当治疗的能力,他们可能会有非常不同的结果。这在伊利诺伊州尤为明显,因为我们在癌症死亡率方面存在巨大的种族差异。”。

“The Illinois Cancer Patients Bill of Rights resolution aims to achieve more equitable and effective cancer care for all Illinois residents. Join us in our fight to ensure all Illinois cancer patients have access to specialized cancer care.”.

“伊利诺伊州癌症患者权利法案决议旨在为所有伊利诺伊州居民实现更公平和有效的癌症护理。加入我们的斗争,确保所有伊利诺伊州癌症患者都能获得专门的癌症护理。”。

The introduction of the bill in Illinois builds upon City of Hope's policy efforts in California, where the California Cancer Patients Bill of Rights and the Cancer Care Equity Act were successfully passed in 2022 with support from a California-based group of Cancer Care is Different Coalition members..

伊利诺伊州引入该法案的基础是希望之城在加利福尼亚州的政策努力,在加利福尼亚州癌症护理不同联盟成员的支持下,加利福尼亚州癌症患者权利法案和癌症护理公平法案于2022年成功通过。。

More about the coalition, resolution, along with other resources and patient stories, can be found at the Cancer Care is Different website. Visit www.cancercarediff.org/illinois/.

有关联盟、解决方案以及其他资源和患者故事的更多信息,请访问“癌症护理不同”网站。访问www.cancercarediff.org/illinois/。

About Cancer Care is Different

关于癌症护理是不同的

The Cancer Care is Different coalition was founded by City of Hope, one of the largest cancer research and treatment organizations in the country, and a group of like-minded health and advocacy organizations focused on expanding equitable access to cancer care. The coalition has advocated for policies that remove barriers to life-saving cancer care.

“癌症护理是不同的”联盟是由希望之城(City of Hope)和一群志同道合的健康和倡导组织成立的,希望之城是美国最大的癌症研究和治疗组织之一,致力于扩大公平获得癌症护理的机会。该联盟主张采取政策,消除挽救生命的癌症护理障碍。

Its advocacy reflects the fact that Cancer Care is Different than other types of health care, because of the speed of discovery and cancer research, and the importance of early detection and optimal treatment for surviving cancer..

它的倡导反映了这样一个事实,即癌症护理不同于其他类型的医疗保健,因为发现和癌症研究的速度,以及早期发现和最佳治疗对癌症生存的重要性。。

About City of Hope

关于希望之城

City of Hope's mission is to make hope a reality for all touched by cancer and diabetes. Founded in 1913, City of Hope has grown into one of the largest and most advanced cancer research and treatment organizations in the U.S., and one of the leading research centers for diabetes and other life-threatening illnesses.

希望之城的使命是让所有患有癌症和糖尿病的人都能实现希望。希望之城成立于1913年,现已发展成为美国最大、最先进的癌症研究和治疗组织之一,也是糖尿病和其他危及生命疾病的领先研究中心之一。

City of Hope research has been the basis for numerous breakthrough cancer medicines, as well as human synthetic insulin and monoclonal antibodies. With an independent, National Cancer Institute-designated comprehensive cancer center that is ranked top 5 in the nation for cancer care by U.S. News & World Report at its core, City of Hope’s uniquely integrated model spans cancer care, research and development, academics and training, and a broad philanthropy program that powers its work.

希望之城研究已经成为许多突破性癌症药物以及人类合成胰岛素和单克隆抗体的基础。美国国家癌症研究所(National Cancer Institute)指定的综合癌症中心是美国新闻与世界报道(U.S.News&World Report)排名全国前五的癌症护理中心,其核心是希望之城(City of Hope)独特的综合模式,涵盖癌症护理、研究与发展、学术与培训,以及广泛的慈善计划,为其工作提供动力。

City of Hope’s growing national system includes its Los Angeles campus, a network of clinical care locations across Southern California, a new cancer center in Orange County, California, and cancer treatment centers and outpatient facilities in the Atlanta, Chicago and Phoenix areas. City of Hope’s affiliated group of organizations includes Translational Genomics Research Institute and AccessHope™.

。希望之城的附属组织包括转化基因组学研究所和AccessHope™。

For more information about City of Hope, follow us on Facebook, X, YouTube, Instagram and LinkedIn..

有关希望之城的更多信息,请在Facebook、X、YouTube、Instagram和LinkedIn上关注我们。。

References

参考文献

1 American Cancer Society, Cancer Statistics Center - American Cancer Society - Illinois. Accessed October 2024.

1美国癌症协会,癌症统计中心-美国癌症协会-伊利诺伊州。2024年10月访问。

2 American Cancer Society, Cancer Statistics Center - American Cancer Society. Accessed October 2024.

2美国癌症协会,癌症统计中心-美国癌症协会。2024年10月访问。

3 2022-2027 Illinois Comprehensive Cancer Control Plan Cancer Burden in Illinois. Accessed October 2024.

3 2022-2027年伊利诺伊州综合癌症控制计划伊利诺伊州的癌症负担。2024年10月访问。