解决M.E.、脑炎症协作组织（BIC）、ChronicleBio、复杂疾病联盟和CareEvolution启动突破性合作，加速对ME/CFS、长期新冠和IACCIs的研究-动脉网

Solve M.E., Brain Inflammation Collaborative (BIC), ChronicleBio, Complex Disorders Alliance, and CareEvolution Launch Groundbreaking Partnership to Accelerate Research on ME/CFS, Long Covid, and IACCIs

CISION 等信源发布 2025-04-30 01:00



可切换为仅中文







LOS ANGELES

洛杉矶

，

April 29, 2025

2025年4月29日

/PRNewswire/ -- Solve M.E., the Brain Inflammation Collaborative (BIC), ChronicleBio, the Complex Disorders Alliance, and CareEvolution have launched

/PRNewswire/ -- Solve M.E.、脑炎症协作组织（BIC）、ChronicleBio、复杂疾病联盟和CareEvolution已启动

a powerful new collaboration

一个强有力的新合作

to advance research on myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), Long Covid, and other infection-associated chronic conditions and illnesses (IACCIs).

推进对肌痛性脑脊髓炎（ME）/慢性疲劳综合症（CFS）、长期新冠及其他感染相关的慢性疾病（IACCIs）的研究。

This partnership unites decades of data, insights, and expertise to accelerate breakthroughs. By sharing knowledge and building on existing work, it aims to deliver faster diagnoses, better treatments, and improved outcomes for the millions affected by these conditions worldwide.

这种合作关系汇聚了数十年的数据、洞察和专业知识，以加速突破性进展。通过分享知识并在现有工作基础上进行建设，它旨在为全球数百万受这些疾病影响的人提供更快的诊断、更好的治疗和改善的健康结果。

Central to the collaboration is Solve M.E., a national nonprofit dedicated to making ME/CFS, Long Covid, and IACCIs widely understood, diagnosable, and treatable. Since 2010, Solve has collected patient-reported data, most recently through

合作的核心是 Solve M.E.，这是一家全国性的非营利组织，致力于使 ME/CFS、长期新冠和 IACCIs 被广泛理解、可诊断和可治疗。自 2010 年以来，Solve 收集了患者报告的数据，最近一次是通过

Solve Together

共同解决

—a dynamic platform created by CareEvolution. It allows users to track symptoms, sync wearables, generate reports for providers, and opt into clinical studies, and it's the largest database of its kind in the U.S.

“——一个由CareEvolution创建的动态平台。它允许用户追踪症状、同步可穿戴设备、为供应商生成报告并选择参与临床研究，这是美国最大的同类数据库。”

The Brain Inflammation Collaborative, a patient-centered nonprofit, will take over the management of the Solve Together platform. BIC will expand the platform to include pediatric populations, additional diagnoses, and assessments aimed to illuminate the links between brain inflammation and mental health.

以患者为中心的非营利组织“大脑炎症协作组织”将接管“共同解决”平台的管理。BIC将扩展该平台，纳入儿科人群、更多诊断以及旨在阐明大脑炎症与心理健康之间联系的评估。

The goal: more diverse and inclusive research across rural, marginalized, and underserved communities, with all materials translated into Spanish to further broaden access..

目标：在农村、边缘化和服务不足的社区开展更加多样化和包容性的研究，所有材料都将翻译成西班牙语，以进一步扩大获取渠道。

'This collaboration will ultimately benefit our growing patient communities and deliver the big breakthroughs they deserve,' said

“这次合作最终将使我们不断增长的患者群体受益，并为他们带来应有的重大突破，”

Emily Taylor

艾米丽·泰勒

, CEO of Solve M.E.

，Solve M.E. 首席执行官

'It will allow for the collection and processing of more data from a broader population and ensure that principal investigators from multiple fields of study can access the open source data via a secure and vetted application process. By joining forces and tearing down research silos, we can leverage our shared resources to expedite progress and find treatments and cures for these complex conditions.'.

“它将允许从更广泛的人群中收集和处理更多的数据，并确保来自多个研究领域的首席研究员可以通过安全且经过审核的申请流程访问开源数据。通过联合力量并打破研究孤岛，我们能够利用共享资源加快进展，为这些复杂疾病找到治疗方法和治愈手段。”

As part of the collaboration, Solve M.E. will share data with both the

作为合作的一部分，Solve M.E. 将与双方分享数据。

Complex Disorders Alliance

复杂疾病联盟

—a patient-founded nonprofit that drives the development of diagnostics and treatments—and

——一个由患者创立的非营利组织，致力于推动诊断和治疗方法的发展，并且

ChronicleBio

编年史生物

, a biotech company advancing research on chronic illnesses including POTS, ME/CFS, and Long Covid. ChronicleBio will apply Solve's patient data to deepen insights and fuel transformative clinical trials.

，一家致力于包括POTS、ME/CFS和长期新冠在内的慢性疾病研究的生物技术公司。ChronicleBio将应用Solve的患者数据来加深见解，并推动变革性的临床试验。

Solve M.E.'s database is uniquely valuable for containing pre- and post-COVID-19 health information, enabling comparisons between individuals with ME/CFS triggered by COVID-19 and those with other origins. This insight helps researchers better understand how the pandemic has impacted long-term health..

解决M.E.的数据库因其包含新冠前后的健康信息而具有独特的价值，可以对由新冠引发的ME/CFS患者和其他原因引发的患者进行比较。这一见解有助于研究人员更好地理解疫情如何影响长期健康。

Christy Jagdfeld

克里斯蒂·雅格菲尔德

, CEO of BIC

，BIC首席执行官

, said, 'The Brain Inflammation Collaborative sees this collaboration and addition to our organization as a tremendous opportunity to catapult us to a place to immediately create meaningful research opportunities. We are very humbled and respectful of this opportunity and know the importance of doing justice to the work ahead of us.'.

说：“脑炎合作组织认为，此次合作以及对我们组织的补充是一个巨大的机会，可以让我们立即跃升至一个能够创造有意义的研究机会的位置。我们对这个机会感到非常谦卑，并充满敬意，也知道做好我们面前工作的重要性。”

Amy Rochlin

艾米·罗克林

, CEO of the Complex Disorders Alliance

复杂疾病联盟首席执行官

, added:

，补充道：

'Patients cannot afford for us to work in silos or duplicate efforts. This partnership is about uniting—pooling data, insights, and expertise—to drive the breakthroughs that put patients first. By learning from one another and building on existing knowledge, we can turn research into real solutions—faster diagnoses, better treatments, and improved lives for those living with complex disorders.'.

“患者无法承受我们孤立工作或重复努力的代价。此次合作旨在团结一致——汇集数据、洞察和专业知识——以推动以患者为先的突破性进展。通过相互学习并基于现有知识进行建设，我们可以将研究转化为真正的解决方案——更快的诊断、更好的治疗以及改善复杂疾病患者的生活。”

Rohit Gupta

罗希特·古普塔

, Co-Founder and CEO of ChronicleBio

ChronicleBio联合创始人兼首席执行官

, stated:

，指出：

'There have been a number of barriers and promises made in bringing research findings to bedside. This collaboration aims to finally break down the silos and ensure each group is working in concert to drive new discoveries across medical, research, and advocacy. At the heart of our efforts is a mutual vision to empower those impacted by chronic illness, leading to more opportunities for all to be part of the path to cures.'.

“在将研究成果转化为临床应用的过程中遇到了许多障碍，也做出了不少承诺。此次合作旨在最终打破壁垒，确保各方协同工作，推动医学、研究和倡导领域的全新发现。我们努力的核心是一个共同的愿景，即赋权那些受慢性疾病影响的人群，为所有人创造更多参与治愈之路的机会。”

A full roll-out of the new Solve Together platform under BIC leadership is expected in 2025.

预计在2025年，在BIC的领导下，全新的“共同解决”平台将全面推出。

For information on accessing data, participants and researchers may contact the BIC team at

有关访问数据的信息，参与者和研究人员可以联系BIC团队

info@braininflammationcollaborative.org

info@脑炎协作组织.org

。

About

关于

Solve M.E.

解决M.E.

：

The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for ME/CFS, Long Covid, and other infection-associated chronic conditions and illnesses (IACCIs). Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world are laying the foundation for breakthroughs that can improve the lives of millions who suffer from various 'long haul' diseases..

Solve ME/CFS Initiative（Solve M.E.）是一个非营利组织，致力于推动对ME/CFS、长期新冠及其他感染相关慢性疾病（IACCIs）的诊断、治疗和治愈的关键研究。我们与科学、医学和制药界的合作，与政府机构的倡导，以及与全球患者团体的联盟，正在为可能改善数百万遭受各种“长期”疾病患者生活的突破性进展奠定基础。

About the Brain Inflammation Collaborative

关于脑炎症合作组织

：

The Brain Inflammation Collaborative (BIC) is a non-profit organization that is committed to investigating the connection between mental health and neuroinflammation caused by infections, autoimmune diseases, allergies, and injuries. Our mission is to advance treatments for neuroinflammation through research, advocacy, and education.

大脑炎症协作组织（BIC）是一个非营利组织，致力于研究心理健康与由感染、自身免疫疾病、过敏和损伤引起的神经炎症之间的联系。我们的使命是通过研究、倡导和教育推动神经炎症的治疗进展。

To achieve this, we develop scalable partnerships and collaborations, sustainable research strategies, and tools to support researchers, patients, and clinicians. We advocate for a collective, longitudinal approach to studying infection-associated chronic conditions, recognizing that research insights from one condition can drive progress across many others, through every stage of life.

为此，我们建立了可扩展的合作伙伴关系与合作，制定了可持续的研究战略，并开发了支持研究人员、患者和临床医生的工具。我们倡导采用集体的、纵向的方法来研究感染相关的慢性疾病，认识到一种疾病的研究成果可以推动其他许多疾病在人生各个阶段取得进展。

Complementing the work of advocacy groups that focus on single conditions, populations, and/or age groups, we work to connect patient communities, ensuring individuals with any of 30+ related diseases can contribute to and benefit from research..

补充那些专注于单一疾病、人群和/或年龄组的倡导组织的工作，我们努力连接患者群体，确保患有30多种相关疾病的个人能够为研究做出贡献并从中受益。

About

关于

CareEvolution

关怀进化

：

With over 15 years of experience in healthcare interoperability, CareEvolution is a leading provider of health data and digital clinical research platforms. The CareEvolution Health Data Platform has enabled leading health plans, provider networks, and health information exchanges to unlock the value of their healthcare data assets.

拥有超过15年医疗保健互操作性经验的CareEvolution是健康数据和数字临床研究平台的领先提供商。CareEvolution健康数据平台使领先的健康计划、供应商网络和健康信息交换机构能够充分释放其医疗保健数据资产的价值。

Payor, provider, and consumer-sourced data is liberated, aggregated, and standardized—enabling many advanced use cases..

支付方、提供方和消费者提供的数据被解放、聚合和标准化，从而实现许多高级用例。

About ChronicleBio:

关于ChronicleBio：

Founded by leading biotech professionals directly impacted by complex disorders, ChronicleBio is focused on building the richest, AI-ready data platform for chronic illness to empower patients, providers, and pharma. With its network of physician and clinical partnerships, ChronicleBio is uniquely positioned to build the world's most comprehensive longitudinal dataset for those living with these debilitating conditions and fuel the next-generation of AI tools that accelerate discovery and expand access to meaningful clinical trials..

由直接受复杂疾病影响的生物技术领军专业人士创立，ChronicleBio专注于构建针对慢性病的最丰富、可应用于人工智能的数据平台，以赋能患者、医疗服务提供者和制药行业。通过其医师和临床合作网络，ChronicleBio能够独特地构建全球最全面的纵向数据集，服务于那些受这些衰竭性疾病困扰的人群，并推动下一代人工智能工具的发展，加速科研发现，扩大有意义的临床试验的可及性。

About

关于

Complex Disorders Alliance

复杂疾病联盟

：

Complex Disorders Alliance is a 501(c)(3) patient-founded nonprofit organization accelerating groundbreaking research, clinical innovation, and patient-centered solutions for complex disorders. CODA collaborates with best-in-class researchers, medical institutions, and industry leaders to accelerate the development of diagnostic tools, targeted therapies, and evidence-based interventions that transform outcomes and improve lives..

复杂疾病联盟是一个501(c)(3)患者创立的非营利组织，致力于加速对复杂疾病的研究突破、临床创新和以患者为中心的解决方案。CODA与一流的研究人员、医疗机构和行业领袖合作，加快诊断工具、靶向治疗和基于证据的干预措施的发展，从而改善结果并提升生活质量。

Media contacts:

媒体联系人：

Karman Kregloe

卡尔曼·克雷格洛

kkregloe@solvecfs.org

323-828-1655

Christy Jagdfeld

克里斯蒂·雅格菲尔德

christy@braininflammationcollaborative.org

christy@脑炎症合作组织.org

262-391-9578