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数字疗法治疗图雷特综合症获支持用于NHS

Digital therapy for Tourette syndrome backed for NHS use

pharmaphorum 等信源发布 2025-05-12 21:01

可切换为仅中文


A digital therapy that could reduce the severity chronic tic disorders like Tourette syndrome has been recommended for use by the NHS for the first time.

一种可能减轻像图雷特综合症这样的慢性抽搐障碍严重程度的数字疗法首次被推荐给英国国家医疗服务体系(NHS)使用。

The technology, known as ORBIT (Online Remote Behavioural Intervention for Tics) and developed by researchers at the University of Nottingham, can be used by NHS patients for the next three years under a conditional go-ahead while further evidence of its efficacy is generated.

这项被称为 ORBIT(在线远程抽动行为干预)的技术由诺丁汉大学的研究人员开发,在未来三年内,NHS 患者可以在获得有条件的批准下使用该技术,同时进一步的有效性证据也将被收集。

The new

新的

recommendation

推荐

firms up earlier draft guidance that backed both ORBIT and another wearable technology called Neupulse to help patients manage tics – the fast, repetitive muscle movements that result in hard-to-control body movements or sounds that are a feature of

进一步巩固了早期的草案指南,该指南支持 ORBIT 和另一种名为 Neupulse 的可穿戴技术,以帮助患者管理抽动症——这种病症表现为快速、重复的肌肉运动,导致难以控制的身体动作或声音。

Tourette syndrome

图雷特综合症

.

Neupulse – a wristwatch-like device that delivers electrical pulses designed to reduce the amount and severity of tics – is being covered by a separate appraisal process by health technology assessment (HTA) agency NICE as it hasn't yet been approved for use in the UK market.

Neupulse——一款类似手表的设备,能够发出旨在减少抽搐频率和严重程度的电脉冲——正由健康技术评估(HTA)机构NICE通过单独的评估流程进行审查,因为它尚未在英国市场获得批准。

The ORBIT decision marks the first time that a NICE committee has recommended a digital therapy for tic-causing conditions, which developers believe could also improve the user's ability to go about their everyday life.

ORBIT 的决定标志着 NICE 委员会首次推荐用于治疗抽动症的数字疗法,开发者认为该疗法还可以提高患者应对日常生活的能力。

The digital intervention can be accessed via a web browser and takes the form of an online guided self-help course - using videos, animations, and interactive scripts – that is targeted at children and young people aged nine to 17 years.

数字干预可以通过网络浏览器访问,形式为在线引导的自助课程——使用视频、动画和互动脚本——目标群体是9至17岁的儿童和青少年。

Users are supported by an online therapist or 'e-coach' across a 10-week programme to deliver a form of cognitive behavioural therapy (CBT) called exposure with response-prevention, which involves confronting the thoughts, images, urges, and situations that make a person anxious and provoke a tic.

用户在一个为期10周的项目中得到在线治疗师或“电子教练”的支持,以提供一种称为“暴露与反应预防”的认知行为疗法 (CBT),这种方法包括直面那些让人焦虑并引发抽动的想法、图像、冲动和情境。

In a large randomised control trial published in

在一项大型随机对照试验中发表于

The Lancet

柳叶刀

, ORBIT was shown to be clinically effective, doubling the rate of important clinical improvement in tics, with durable benefits lasting for 18 months after the course was completed.

,ORBIT 被证明在临床上有效,将抽动症的重要临床改善率提高了一倍,且在疗程结束后,这种改善效果持续了 18 个月。

NICE's decision to back the digital therapy followed a survey of people with chronic tic disorders and Tourette syndrome, as well as their parents or carers, which revealed it can take up to two years to get a diagnosis and treatment options are very limited.

英国国家卫生与临床优化研究所决定支持这种数字疗法,此前曾对患有慢性抽动障碍和图雷特综合症的人及其父母或护理人员进行了一项调查,调查显示,患者可能需要长达两年的时间才能得到诊断,而且治疗选择非常有限。

The first line treatment option in the NHS will remain psychoeducation, which combines the elements of CBT and education, with ORBIT offered as a second-line option after clinical assessment by a GP.

在英国国家医疗服务体系(NHS)中,一线治疗选项仍将是心理教育,它结合了认知行为疗法(CBT)和教育的元素,在全科医生(GP)进行临床评估后,ORBIT将作为二线选择提供。

It is estimated that more than 300,000 children and adults in the UK live with a tic-causing condition, but less than 20% of children and young people currently have access to behavioural therapies.

据估计,英国超过 30 万名儿童和成人患有抽动症,但只有不到 20% 的儿童和年轻人目前可以接受行为疗法。