SILVER SPRING, Md.

马里兰州银泉市

,

，

March 27, 2026

2026年3月27日

/PRNewswire/ -- The

/PRNewswire/ -- The

TSC Alliance

TSC联盟

®

®

today announced a three-year, $500,000 investment from the Anita Bhatia Foundation for Tomorrow to improve tuberous sclerosis complex (TSC) clinical care and accelerate research to advance clinical care and accelerate research for tuberous sclerosis complex (TSC), with a focus on better understanding and treating TSC-Associated Neuropsychiatric Disorders (TAND)..

今天宣布了Anita Bhatia Foundation for Tomorrow提供的三年50万美元的投资，用于改善结节性硬化症（TSC）的临床护理，并加速推进TSC临床护理和研究，重点是更好地理解和治疗与TSC相关的神经精神障碍（TAND）。

This funding will support the 2026 International TSC Clinical Consensus Conference, where global experts will update the International TSC Diagnostic Criteria, Surveillance, and Management Recommendations. It will also advance the research priorities of Anya's Accelerator through 2028.

这笔资金将支持2026年国际TSC临床共识会议，全球专家将在会上更新国际TSC诊断标准、监测和管理建议。它还将推动Anya加速器的研究优先事项直至2028年。

Established in 2022 through a gift from the Ramesh and Kalpana Bhatia Foundation, Anya's Accelerator is designed to catalyze the development of biomarkers to aid clinical care and the development of interventions for autism and other impactful aspects of TAND. TAND encompasses a wide range of cognitive, behavioral and psychiatric manifestations associated with TSC's impact on brain function..

2022年，通过Ramesh和Kalpana Bhatia基金会的捐赠成立的Anya's Accelerator旨在推动生物标志物的开发，以辅助临床治疗，并为自闭症及TAND其他重要方面制定干预措施。TAND涵盖了与TSC对脑功能影响相关的广泛认知、行为和精神表现。

'Through our continued support of Anya's Accelerator and the TSC Alliance, the Anita Bhatia Foundation for Tomorrow is investing in what TSC families need most: answers grounded in truth, science, and data. In a time when uncertainty can overshadow scientific progress, we believe more strongly than ever in the power of rigorous research to illuminate what is possible,' said  Anita Bhatia, Executive Director of the AB Foundation for Tomorrow.

“通过我们对Anya加速器和TSC联盟的持续支持，Anita Bhatia明日基金会正在投资TSC家庭最需要的东西：基于事实、科学和数据的答案。在不确定性可能掩盖科学进步的时刻，我们比以往任何时候都更加坚信严谨研究的力量能够揭示可能性，”AB明日基金会执行董事Anita Bhatia表示。

'This investment reflects our commitment to accelerating discovery, strengthening hope, and ensuring that every family affected by TSC has access to knowledge, treatments, and a future shaped by scientific evidence—not fear.'.

“这项投资体现了我们加速发现、增强希望的承诺，并确保每个受TSC影响的家庭都能获得知识、治疗以及由科学证据而非恐惧塑造的未来。”

With this continued investment, the TSC Alliance aims to establish a Core Outcome Measure Set to standardize how clinicians assess and track TAND manifestations, particularly in clinical studies and trials. The organization will also collect and test more patient samples coupled with neuropsychiatric data to find and validate a blood-based biomarkers panel of TAND diagnosis and progression..

通过这一持续投资，TSC联盟旨在建立一个核心结果测量集，以标准化临床医生评估和跟踪TAND表现的方式，特别是在临床研究和试验中。该组织还将收集和测试更多的患者样本，并结合神经精神数据，以寻找并验证用于TAND诊断和进展的血检生物标志物组合。

'TAND continues to be one of the greatest unmet needs in the TSC community, having an outsized impact on quality of life for both the person with the disease and their loved ones,' says Kari Luther Rosbeck, President and CEO of the TSC Alliance. 'We're grateful to the Anita Bhatia Foundation for Tomorrow for continuing to champion efforts to ensure those with TSC receive the highest quality of care and enabling research that moves us closer to finding answers for families affected by TAND.'.

“TAND 仍然是 TSC 社区中最大的未满足需求之一，对患者及其亲人生活质量产生巨大的影响，”TSC 联盟主席兼首席执行官 Kari Luther Rosbeck 表示。“我们非常感谢 Anita Bhatia Foundation for Tomorrow 继续致力于确保 TSC 患者获得最高质量的护理，并推动研究，让我们更接近为受 TAND 影响的家庭找到答案。”

'We don't know who will experience TAND and how those manifestations will progress in severity, and current screening methods for comorbidities like autism can be delayed, missing the opportunity for early intervention,' says Dean Aguiar, TSC Alliance Senior Vice President, Translational Research. 'The development of tools to better measure TAND symptoms–diagnosis, progression and response to therapy–can lead to quicker detection and ultimately improved outcomes.'.

“我们不知道谁会经历TAND，也不知道这些表现的严重程度将如何进展，而且目前对自闭症等共病的筛查方法可能会延迟，错失早期干预的机会，”TSC联盟高级副总裁、转化研究负责人迪恩·阿吉亚尔说道。“开发更好的工具来测量TAND症状——包括诊断、进展和对治疗的反应——可以实现更快速的检测，并最终改善结果。”

About the TSC Alliance

关于TSC联盟

The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC. It drives research, improves quality care, works to increase access and advocates for all affected by the disease. For more information, visit

TSC联盟是一个国际公认的非营利组织，致力于采取一切措施改善TSC患者的生活。它推动研究，提高护理质量，努力增加患者获得资源的机会，并为所有受该疾病影响的人倡导权益。欲了解更多信息，请访问

tscalliance.org

tscalliance.org

.

。

About the Anita Bhatia Foundation for Tomorrow

关于阿妮塔·巴蒂亚明日基金会

The Anita Bhatia Foundation for Tomorrow advances equity by removing structural barriers, reshaping narratives, investing in youth, and strengthening collective action across systems of care, education, and power. Rooted in nearly two decades of philanthropic leadership through the Ramesh and Kalpana Bhatia Family Foundation, its work is grounded in the belief that lasting change requires collaboration, storytelling, and sustained investment in people and ideas.

安妮塔·巴蒂亚未来基金会通过消除结构性障碍、重塑叙事、投资青年以及加强在护理、教育和权力系统中的集体行动来推动公平。该基金会植根于拉梅什和卡尔帕娜·巴蒂亚家族基金会近二十年的慈善领导，其工作基于这样一个信念：持久的变革需要协作、讲述故事以及对人才和思想的持续投资。

It brings partners together to expand opportunity and drive more inclusive, systems-level solutions for the future. Learn more at .

它将合作伙伴聚集在一起，扩大机会，并推动未来更具包容性的系统级解决方案。欲了解更多信息，请访问 。

abfoundationfortomorrow.org

abfoundationfortomorrow.org

.

。

Contact

联系

Dan Klein

丹·克莱因

Senior Director, Communications

高级总监，通信部门

TSC Alliance

TSC联盟

(301) 562-9890

(301) 562-9890

[email protected]

[email protected]

SOURCE TSC Alliance

来源 TSC联盟

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