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对癌症患者的指导和教育

Guidance and Education For Employees Facing a Cancer Journey

MedCity News | 2024-04-17 | 翻译由动脉网AI生成,点击反馈

可切换为仅中文


Let me share the story of a recent patient named Franklin.

让我分享一下最近一位名叫富兰克林的病人的故事。

Sudden weight loss and persistent abdominal pain led Franklin, an administrator at a large university, to visit his primary care doctor who ordered some tests. When the test results revealed a sizable mass on his pancreas, Franklin was scared. He wanted answers: Is it cancer? Do I need chemo? What do I do? Who can help me?.

突然的体重减轻和持续的腹痛导致一所大型大学的管理人员富兰克林去看他的初级保健医生,医生要求进行一些检查。当检测结果显示他的胰腺上有一个相当大的肿块时,富兰克林很害怕。他想要答案:是癌症吗?我需要化疗吗?我该怎么办?谁能帮我?。

Even for the most common cancers in the U.S. (breast, lung, colon, and prostate) it can take upwards of a month to get an appointment with a specialist. In the last 20 years wait times have doubled to see oncologists. The average time to treat is about six weeks and many studies show that longer time to treat worsens outcomes.

即使是美国最常见的癌症(乳腺癌、肺癌、结肠癌和前列腺癌),也可能需要一个月以上的时间才能预约专家。在过去的20年中,看肿瘤学家的等待时间增加了一倍。平均治疗时间约为六周,许多研究表明,更长的治疗时间会恶化预后。

For Franklin and his family, the wait was too long—especially at such an emotional time. Instead, they turned to virtual care. .

对于富兰克林和他的家人来说,等待太长了,尤其是在这样一个情绪激动的时刻。相反,他们转向了虚拟护理。。

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行为健康、互操作性和经济性:满足CMS最终规则遵从性的要求

In a webinar on April 16 at 1pm ET, Aneesh Chopra will moderate a discussion with executives from DocuSign, Velatura, and behavioral health providers on eConsent, health information exchange and compliance with the CMS Final Rule on interoperability.

在美国东部时间4月16日下午1点的网络研讨会上,Aneesh Chopra将主持与DocuSign、Velatura和行为健康提供者的高管就eConsent、健康信息交换和遵守CMS互操作性最终规则进行的讨论。

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DocuSign and MedCity News

DocuSign和MedCity新闻

Virtual care networks help people navigate the healthcare system and can connect them to leading specialists—for answers to any health question.

虚拟护理网络帮助人们导航医疗保健系统,并可以将他们与领先的专家联系起来,以获得任何健康问题的答案。

Virtual care transforms speed of access to answers

虚拟护理改变了获得答案的速度

Virtual care gave Franklin a fast and easy place to start: an online platform that allowed him to ask questions and meet with a doctor for guidance. In a matter of days, Franklin was connected with a hospitalist who listened intently, asked thoughtful questions, and guided Franklin (and his family, who also participated in the meeting) through a typical treatment plan for pancreatic cancer. .

虚拟护理为富兰克林提供了一个快速而简单的起点:一个在线平台,允许他提问并与医生会面以获得指导。几天之内,富兰克林与一位住院医生取得了联系,这位医生认真倾听,提出了深思熟虑的问题,并指导富兰克林(及其家人,也参加了会议)完成了一项典型的胰腺癌治疗计划。。

She spent almost an hour answering Franklin’s questions, describing different options, and empowering him to look past his fear to his options. And she reassured him that she would continue to be available to provide personalized guidance.

她花了将近一个小时回答了富兰克林的问题,描述了不同的选择,并使他能够从恐惧中看到自己的选择。她向他保证,她将继续提供个性化指导。

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A Deep-dive Into Specialty Pharma

深入研究专业制药

A specialty drug is a class of prescription medications used to treat complex, chronic or rare medical conditions. Although this classification was originally intended to define the treatment of rare, also termed “orphan” diseases, affecting fewer than 200,000 people in the US, more recently, specialty drugs have emerged as the cornerstone of treatment for chronic and complex diseases such as cancer, autoimmune conditions, diabetes, hepatitis C, and HIV/AIDS. .

特种药物是一类用于治疗复杂、慢性或罕见疾病的处方药。虽然这种分类最初是为了定义罕见的,也称为“孤儿”疾病的治疗方法,在美国影响不到20万人,但最近,特种药物已成为治疗慢性和复杂疾病的基石,如癌症,自身免疫性疾病,糖尿病,丙型肝炎和艾滋病毒/艾滋病。

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PurpleLab

She encouraged Franklin to see an oncologist at an academic medical center so that he could look into other options like clinical trials. The physician then provided a curated list of leading oncologists and assured Franklin that these specialists could work with his local doctors to offer additional guidance and support on the best course of treatment.  .

她鼓励富兰克林去学术医学中心看肿瘤学家,以便他可以研究其他选择,如临床试验。医生随后提供了一份精选的顶尖肿瘤学家名单,并向富兰克林保证,这些专家可以与当地医生合作,为最佳治疗方案提供额外的指导和支持。。

Start with virtual care

从虚拟护理开始

People with cancer no longer carry the burden of unanswered questions for the weeks or months it takes to schedule the next in-person appointment. With the support of a virtual network of leading specialists, patients can access support quickly and conveniently, and they can include their family members and caregivers in the process. .

癌症患者在安排下一次面对面的预约所需的数周或数月内不再承担未回答问题的负担。在领先专家的虚拟网络的支持下,患者可以快速方便地获得支持,并可以在此过程中包括其家人和护理人员。。

Typically, employers provide membership to virtual care as an employee benefit. For an employee-member, like Franklin, facing cancer, here’s how it works:

通常情况下,雇主提供虚拟护理会员资格作为员工福利。对于像富兰克林这样面临癌症的员工来说,它是如何工作的:

Access to answers. Virtual care serves as a clinical front door to trusted medical information. Members, employees, and their families can ask any health question, no matter how general or specific, from “where do I start?” to “what is the best medication for my cancer?”

访问答案。虚拟护理是可信医疗信息的临床前门。成员、员工及其家人可以问任何健康问题,无论是一般性的还是具体的,从“我从哪里开始?”到“什么是治疗癌症的最佳药物?”

A guide throughout the journey. Members are quickly connected with a compassionate physician who provides personalized support throughout their cancer journey. This physician serves as a guide who helps members and their families navigate the complexities of the healthcare system. By providing answers and a framework for approaching the concern, virtual care supports patient decision-making and empowers members with information and guidance that can help transform the complexity and fear of cancer into specific plans that create a path forward in care..

全程导游。会员可以很快与一位富有同情心的医生取得联系,这位医生在他们的癌症之旅中提供个性化支持。这位医生是一名向导,帮助成员及其家人了解医疗保健系统的复杂性。通过提供解决问题的答案和框架,虚拟护理可以支持患者的决策,并为成员提供信息和指导,帮助他们将癌症的复杂性和恐惧转化为具体的计划,从而为护理提供前进的道路。。

Fast connections to leading specialists. Members can be connected to  a network of leading specialists within hours or days, across any specialty or subspecialty, based on their specific type of cancer and their place in the cancer journey. Access to the right specialist supports personalized treatment recommendations and can drive better outcomes..

与领先专家的快速联系。会员可以在数小时或数天内连接到任何专业或子专业的领先专家网络,这取决于他们的特定癌症类型及其在癌症旅程中的地位。获得正确的专家支持个性化治疗建议,并可以取得更好的结果。。

Support for the journey

为旅程提供支持

More than 1.6 million people are diagnosed with cancer each year—and recently there has been a troubling increase in late-stage cancer diagnoses. Imagine if all employees had the same access to medical guidance and support that Franklin did.

每年有160多万人被诊断出患有癌症,最近晚期癌症诊断人数令人不安地增加。想象一下,如果所有员工都能像富兰克林一样获得医疗指导和支持。

Help navigating the healthcare system, coupled with convenient, personalized access to the right specialists vastly improves each patient’s journey, ameliorating feelings of hopelessness and loneliness—granting them better information and a greater sense of agency. In vulnerable moments when employees need it most, virtual specialty care delivers a human connection that offers empathy, support, and guidance—helping members take control of their healthcare decisions and optimizing health and quality of life.

帮助导航医疗保健系统,再加上方便、个性化地访问正确的专家,极大地改善了每位患者的旅程,改善了绝望和孤独感,为他们提供了更好的信息和更大的代理感。在员工最需要的脆弱时刻,虚拟专业护理提供了一种人际关系,可以提供同理心、支持和指导,帮助成员控制自己的医疗决策,优化健康和生活质量。

Employers who provide virtual care benefits, deliver a people-first benefit that demonstrates care and concern, even while supporting better outcomes at lower cost — emotionally, socially, physically, and financially..

提供虚拟护理福利的雇主提供以人为本的福利,表现出关怀和关怀,即使在情感、社会、身体和财务上以较低的成本支持更好的结果。。

Photo: elenabs, Getty Images

照片:elenabs,Getty Images

Dr. Mary Mulcare

Mary Mulcare医生

Mary Mulcare, MD, FACEP, is the Chief Medical Officer at Summus and oversees all clinical aspects of operations. Mary also serves as a Clinical Assistant Professor of Emergency Medicine at NewYork-Presbyterian/Weill Cornell Medicine, and has held several leadership roles at Weill Cornell, including Director of Undergraduate Medical Education in the Department of Emergency Medicine and Assistant Director of the Margaret and Ian Smith Clinical Skills Center.

FACEP医学博士Mary Mulcare是Summus的首席医疗官,负责监督手术的所有临床方面。玛丽还担任纽约长老会/威尔康奈尔医学院急诊医学临床助理教授,并在威尔康奈尔大学担任过多个领导职务,包括急诊医学系本科医学教育主任和玛格丽特和伊恩·史密斯临床技能中心助理主任。

She continues to make significant academic contributions to the fields of medical education and Geriatric Emergency Medicine. Mary completed her undergraduate education at Princeton University and obtained her medical degree from Columbia University College of Physicians and Surgeons, graduating with honors from the AOA Medical Honor Society and the Gold Humanism Society.

她继续在医学教育和老年急诊医学领域做出重大学术贡献。玛丽在普林斯顿大学完成了本科教育,并获得了哥伦比亚大学内科医生和外科医生学院的医学学位,并以优异成绩毕业于AOA医学荣誉协会和黄金人文主义协会。

She served as Chief Resident of the Emergency Medicine residency program at NewYork-Presbyterian Hospital and completed a fellowship in Geriatric Emergency Medicine at Weill Cornell Medical Center..

她曾担任纽约长老会医院急诊医学住院医师计划的首席住院医师,并在威尔·康奈尔医学中心完成了老年急诊医学奖学金。。

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